If I hear the phrase “survival of the fittest” one more time I might self-combust

Over the past two years the workforce has adjusted, relocated and refocused. Countless people have changed jobs or added more COVID-19 proof strings to their bow. People who are immunocompromised like me, if we’re lucky, have found ways to work from home instead of out in the community. As the regulations around social distancing, masks, gatherings and the resulting risks change on an almost weekly basis, we’ve needed to take caring for ourselves into our own hands.

When the country re-opened, I put a hold on making any further bookings as a marriage celebrant. Currently, I'm ghost writing ceremonies for busy celebrants, working on a book and writing transcripts for various artists and journalists. Alongside Tina Helm from Women’s Health Loddon Mallee, I’m also taking part in a meaningful and potentially life-changing project. 

Together we are gathering stories of people with compromised immune systems and discussing how their lived experience has been during the pandemic. All of the participants live across the area known as Loddon Mallee which stretches between Mildura, the Mallee, Bendigo, Echuca, Shepparton and Castlemaine. We’re seeking people who identify as women, non-binary, or gender diverse.

 We’re hoping that booster and vaccine uptake is increased as a result of the project, so that all vulnerable citizens can have the highest level of protection possible from this thing that could kill us.

 It helps me as much as the wider population if we succeed, because I’m one of the vulnerable people so breezily mentioned as having underlying conditions. If I hear the phrase “survival of the fittest” one more time I might self-combust.

 Collecting and distributing stories from those in our community who are affected is the perfect antidote to feeling so helpless. I’m no scientist - I don’t have any medical skills other than the ones I’ve learned over the last sixteen years caring for myself in my disabled body - but storytelling is a modality I’m very familiar with. It was narrative therapy that helped me accept after a decade that I couldn’t will myself out of my disability.

 The lives of vulnerable people are sacred and have such exquisite value. I hope the stories we share will connect with the humanity in those on the fence about getting their jab. We can only isolate so much, and we need everyone’s help to stay safe.

 Recently during the Disability Royal Commission into violence, abuse, neglect and exploitation of people with disability, people bravely shared their traumatic experiences. They shared their stories so that the possibility of change could exist. There are no guarantees, but the strength it takes to use your unique voice to say that you matter and that your life is worth having quality care, joy and safety - such actions do not go unnoticed.

 If you live in the Loddon Mallee region, or know someone who does that might fit the bill, please take a look at this questionnaire. All participants are given a voucher for their time, and you can remain anonymous if you wish. We would love to hear from you.